strangers and the responsibilities of being strange

Most of us in the West feel increasingly isolated from each other, monads with our heads craned towards our smart-phones, or wandering the aisles half-conscious. The proliferation of both social media and cafes is part of the same dynamic – we long for human contact, yet we’re nervous about stepping outside our comfortable circle.

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Talking to strangers is unsettling, in both senses – a little frightening and potentially liberating. That goes for all of us, but for those of us who are visibly different, whose bodies are obviously non-conformist, the approach of a stranger carries some peculiarly acute dilemmas.

I want to mention just two examples, and dwell for a moment in the gulf between them.

Late last year, at the local organic grocery, my partner and I were placing the last few items in our basket. Pumpkin, kipflers, silverbeet, most likely. It’s a narrow shop; you have to breathe in or walk sideways to pass people in the aisles. As we were leaving, a woman approached me with a vague smile on her face, her posture leaning slightly towards me. “Hello..”

I used to run a cafe, and I’m visibly memorable, so I assumed she recognised me; I smiled and said hi in return. She asked me how I was going, suggesting things must be pretty difficult. She told me she had a friend who specialised in alternative treatment, and that her own back pain was greatly relieved by visiting her. Oh, ok. She didn’t know me. It was going to be one of those “unsolicited charity conversations”.

I was in a reasonably optimistic mood and felt ok about being open with her. People rarely talk about embodiment, so perhaps this was a chance to share my own version of being human, and move pleasantly onwards. I told her I have Marfan Syndrome, which for me has meant an unusual shape, but actually no pain, luckily and gladly, and smiling while I said how ironic it is.

“Oh, you must have pain”, she said.

“Um, no, not really, no more than anyone, probably less, actually”.

This went back and forth for a while. I kept telling her my experience. She kept insisting she could help me with the problem I didn’t have.

Eventually the pointlessness of it ate away at my resolve. I was polite, direct, with perhaps just a hint of impatience. “I’m sorry, I really have to go, I’m really fine, OK?”.

She was stunned, almost mortified. “Ughh, I was only trying to be helpful!”. I’m reminded that my body seems to raise all sorts of questions that “demand” answers, and that fundamentalism is not limited to religion.

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Fast-forward to just a few weeks ago. I’m in the middle of a busy period, wrestling with a thesis and other obligations, rushing into the local supermarket to pick up a few essentials. I only notice my own low-level stress when the little girl in the pink princess outfit cuts me off, running obliviously through the aisles – “Daddy! Look at me!” – and I’m instantly irritated. I try to avoid them, head down another aisle. Of course, being tired, I become indecisive and end up staring at a wall of condiments, unsure.

Suddenly, there’s “Dad” at my side. “Uh… hi…”, he says, casually but nervously, “my daughter was just asking me about your back, and I told her it’s better to ask than to stare, so I’m sorry to bother you, but is it ok if I ask you?”.

At these moments, a certain texture of solidity in my body comes up against a fluid world. I’m face to face with my own reluctance to engage, but underneath there is a way of being that accepts, even relishes, interconnection and the blurring of boundaries. Decision time, in a split second.

I tell them both, as simply as I can – yes, this is my spine, it’s just more curved than straight, and I’m healthy. Everyone has different shaped bodies. The little princess smiles, shyly looks down at her feet, then around the store. She’s obviously happy to meet someone unusual, but just as obviously awkward and a bit bored now.

Dad tells me they’ve asked other people before, and apparently she likes to hug people goodbye. Sure, why not? So, a hug and a brief chat later, we go our separate ways. Through the aisles and towards the checkout, with a slight crack in normality.

For a long time, though I wouldn’t have said it this way, I deeply resented my body and the kind of attention it attracted (and continues to attract). I wanted to be invisible, to move through the world with the anonymity I imagined everyone else had. Peoples’ eyes were like the rays of a harsh summer sun, the intensity magnified through the glass of my own discomfort. They burnt and hurt.

And nothing on earth consumes a man more quickly than the passion of resentment.

Friedrich Nietzsche, ‘Ecce Homo’

I have come gradually, fitfully, with some reluctance, to a realisation that this is the life and the body I have. Autonomy and self-determination is a mythical horizon. The love and support that I have been given over the years is evidence of that – without it, I would still be rushing back to the shadows, wishing for the impossible. In the face of the current neoliberal economy and consumerist culture, in spite of my own self-doubt and fragility, I want to build the connections that nourish myself and others. I want this life.

So, I think that being strange carries a kind of responsibility. There is no prescription, but I would suggest two guiding principles – openness to the unpredictability of the encounter, and respect for the particular embodied subjectivity of the other person. These principles go both ways of course.

For those of you who are strange and are often approached by strangers, I can’t tell you how to respond, though. We all have to find our own way of dealing with this “responsibility”, whether it be a repertoir of answers or a reserve of attitude that we draw on. Each body is unique, and each person makes their way through difference with their own temperament and aspirations. After all, we are more than what makes others stare at us.

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For some other thoughtful and useful perspectives, try Carly Findlay’s blog post, Carly’s guest blogger Bailey, and Haley Morris-Cafiero’s provocative photography project.

Feel free to suggest other links or your own suggestions or insights – I’d love to see them.

reverberations and affinity

 

Sometimes an acquaintance transforms into a friend.  Time passes, random events intervene and affinities flower.  Recently, I went to a Quippings event at Hares & Hyenas bookshop in Fitzroy – one of the most mind-blowing literary/performance events you are ever likely to encounter.  The next one is on 30th November and is entitled “Piss on Pity”, if you want a hint.  And you really should go.  Even if you’re not from Melbourne.

Anyway, at the last one, I re-met Carly Findlay, prolific blogger, appearance activist, writer and all-round great woman.  We got to talking, and she asked me to write a guest spot for her blog, basically telling my story of visible difference.  It starts like this –

In the last twelve years, I’ve had the pleasure of quitting four positions – the Commonwealth public service(Child Support Agency, would you believe?), a cafe-venue-bar I co-owned called “Good Morning Captain” in Collingwood Melbourne, Medicare Australia (yes, in a call centre), and a claustrophobic admin job for a micro-managing tax lawyer. And I’ve lived in eight different houses in the last twenty-five years (though, yes, all of them in Melbourne). But there are two things that I could never leave, even if I wanted to. They define me. I’m as inseparable from them as wings from sky, pith from fruit, thought from words.

Those two things are Marfan Syndrome and poetry.

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The blog post is here, if you want to know how it ends, but it doesn’t end, really, does it?  Poetic language and just being in the same room together can build bridges, sure, but the gulfs between us are perpetual and always at risk of expanding.  Everything needs reinforcing, extending, exploring…

Carly herself has just written an amazing post called “On ‘normal and cures and pride”.  She writes,

I see two sides to a cure: a medical cure and an appearance cure. I don’t want either. A medical cure (or treatment, as things stand now) may hold worse side effects than Ichthyosis itself. And I think that an appearance cure is conforming to what society expects of me – the expectation that I would want to look ‘normal’ and de-identify with a condition that I’ve become accustomed to and accept. I see it as a bit vain, even.

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In the future, I plan to introduce you to other writers, thinkers and activists who I feel affinity with.  Virtual community is also real community – full of arguments, passion, embraces, patience and complexity.  ‘Normal’ is incredibly narrow.  And ‘abnormal?  It’s not singular, it’s multiple, innumerable in all its manifestations of beauty and becoming.  It’s you.

 

poems, abnormality, puppetry & reviews

What do those four words have in common?  In the best blogging tradition – me. 

October’s been a huge month.  I’ve been adjusting to a new job, ten hours a week (2.5 hrs x 4 days) at a medical library.  Plus, planning and preparing for the tour of the Australian Poetry Omnibus Mobile Library – which included a trip up the Maldon Folk Festival (a fantastic, vibrant, daggy, rain-enduring festival).  And I’ve also been preparing my application for Masters of Arts (Creative Writing) at the University of Melbourne.  If the door’s open (and if there’s a pile of scholarship money awaiting), I’ll be researching and writing about how unusual/abnormal bodies make themselves known through contemporary poetry.  Any thoughts on this topic would be hugely appreciated – from any angle – theoretical, poetic, personal, political, etc…

This week – I’m performing at La Mama Theatre in Carlton – that wonderful, iconic, intimate theatre venue.  They do a series of short seasons for experimental works-in-progress called “Explorations“.  I’m performing an adaptation of my poem “9/10/1973 M3”, called “Ambiguous Mirrors” – it’s a puppetry and poetry collaboration with Rachael Wenona Guy.  Details below.  An edited clip of an earlier version is here on You Tube

  • Ambiguous Mirrors (in a double with Home Stretch, by Tom Davies)
  • @ La Mama Theatre, 205 Faraday St Carlton
  • Thursday 11th, Friday 12th & Saturday 13th @ 7.30pm
  • Bookings on-line or on 03 9347 6142.

Also, now that my book “Among the Regulars” has been out for a while…  how does anyone get reviewed?  Is this because reviews are rarely published?  Is it because people write more than they read?  Do we just not have much of a reviewing culture?